Its Not Easy Being Rare

Kermit the frog says that its not easy being Green, and likewise, its not easy being rare either. Today is rare disease day and to really illustrate for you what its like to have a rare disease I want to tell you about my day today. First some information on Rare Disease Day. Rare Disease…

Feeding Tube Awareness Week

In the past year and a half of my life I have met more people with feeding tubes than I ever have in my life. Lets backtrack. My life has never been surrounded by health. For the first two decades of my life I was searching for a diagnosis nowhere to be found and in…

Accepting Unhealthily Disabled People

Two summers ago i applied for the program YP4 or Young People For. Its a youth program of the Center for American Progress which many of my young progressive friends have done. I got into the program as I knew I would, but when it came time to go to the summit it was the…

Disabled Travel: Israel

This past 10 days I went to Israel, Eretz Yisrael, on a Birthright trip. It was a very unusual trip because it was not originally designed to be accessible. Basically, Taglit-Birthright, the organization that sponsors these free trips does offer an accessible trip. However, according to multiple representatives I spoke to told me that these…

International Day of People with Disability: Violence

Yesterday was a solemn day in the disability community. A center that provides services to people with developmental and intellectual disabilities was victim to a mass shooting. Disabled people are much more likely than the general population to be victims of violence and domestic violence. Though we don’t know the motive for this horrific event,…

TDOR: The Search for Hope

Tomorrow is Transgender Day of Remembrance, a day where we come together to remember those who have been taken from us this year in the trans community. Sadly this year those numbers, especially amongst trans women of color, are extremely high. ¬†Over 25 trans people have been killed this year in the US alone, and…