Reality Sets In

Hello. Its been a while since I’ve written here, but I had an idea for a blog post while trying to sleep. Going to school with chronic illness can be challenging. I got sick my sophomore year of college and though I wasn’t as sick at that time it was still very hard. Somehow, unimaginably I made…

The Health Care System Has Failed Me…Again

First of all I apologize for neglecting this blog for so long, and also happy Dysautonomia Awareness Month. I will make an update post soon, but that’s not what this post is for. Last year I was diagnosed with 2 conditions called craino-cervical instability and atlanto-Ataxial instability. In laymen’s terms this describes when your top…

#ThisismyEDS part 2

PART 2: Diagnosis with Ehlers-Danlos Syndrome #ThisIsMyEDS     How long did diagnosis/self-diagnosis take? When and how were you ultimately diagnosed?  My diagnosis was almost an accident. I had a routine EKG to monitor side effects of a medication I was taking for depression at the time. My EKG showed sinus tachycardia and I was…

#thisismyEDS

I was invited by Annie Lainey of youtube fame to do this tag and i’m really excited about it. My goal for this EDS awareness month is to think outside of the box. PART 1: WHAT IS EDS IS LIKE ON MY BODY #ThisIsMyEDS Introduce yourself: name, pronoun(s), and EDS type. Hi, I’m Emet, I…

Update + Week 1 of RRC

So its been a while since i posted an update, so ill just kind of breeze through the last 2 months. -I went to California to see my lovely sister, and to a trans training at USC -I went to the NCIL conference in DC, and saw many of my lovely and old friends. I…

August is Gastroparesis Awareness Month

Today is August 4th, the first week of gastroparesis awareness month. Gastroparesis literally means paralysis of the stomach, but its so much more than that. Its immediate fullness upon eating very little, bloating that looks like your pregnant, pain that keeps you up all night, and nausea + vomiting that don’t allow you to eat…