The Health Care System Has Failed Me…Again

First of all I apologize for neglecting this blog for so long, and also happy Dysautonomia Awareness Month. I will make an update post soon, but that’s not what this post is for. Last year I was diagnosed with 2 conditions called craino-cervical instability and atlanto-Ataxial instability. In laymen’s terms this describes when your top…

#ThisismyEDS part 2

PART 2: Diagnosis with Ehlers-Danlos Syndrome #ThisIsMyEDS     How long did diagnosis/self-diagnosis take? When and how were you ultimately diagnosed? ┬áMy diagnosis was almost an accident. I had a routine EKG to monitor side effects of a medication I was taking for depression at the time. My EKG showed sinus tachycardia and I was…

#thisismyEDS

I was invited by Annie Lainey of youtube fame to do this tag and i’m really excited about it. My goal for this EDS awareness month is to think outside of the box. PART 1: WHAT IS EDS IS LIKE ON MY BODY #ThisIsMyEDS Introduce yourself: name, pronoun(s), and EDS type. Hi, I’m Emet, I…

Update + Week 1 of RRC

So its been a while since i posted an update, so ill just kind of breeze through the last 2 months. -I went to California to see my lovely sister, and to a trans training at USC -I went to the NCIL conference in DC, and saw many of my lovely and old friends. I…

August is Gastroparesis Awareness Month

Today is August 4th, the first week of gastroparesis awareness month. Gastroparesis literally means paralysis of the stomach, but its so much more than that. Its immediate fullness upon eating very little, bloating that looks like your pregnant, pain that keeps you up all night, and nausea + vomiting that don’t allow you to eat…

ADA at 26: Speech from NCIL ADA Rally

The following is the text of a speech I gave at the rally for the Americans with Disabilities Act 26th anniversary rally hosted by the National Council on Independent Living. My name is Emet Tauber and I am 21 years old. The ADA was created before my lifetime. 26 years ago, disability activists stood here…