#thisismyEDS

I was invited by Annie Lainey of youtube fame to do this tag and i’m really excited about it. My goal for this EDS awareness month is to think outside of the box. PART 1: WHAT IS EDS IS LIKE ON MY BODY #ThisIsMyEDS Introduce yourself: name, pronoun(s), and EDS type. Hi, I’m Emet, I…

Ehlers Danlos Syndrome Awareness Month Day #27: Frustration and Medical Devices

Ive had the same GI problem for over a year now. The cycle just goes the same way. Eat, nausea, cramping, vomitting, cramping, diarrhea (or constipation). All my doctors thought it was just IBS, but ive taken every med, ended up in the ER 4 times and im still struggling just to survive. Since this…