Today is August 4th, the first week of gastroparesis awareness month. Gastroparesis literally means paralysis of the stomach, but its so much more than that. Its immediate fullness upon eating very little, bloating that looks like your pregnant, pain that keeps you up all night, and nausea + vomiting that don’t allow you to eat anything.
Many people with GP require erental or parental nutrition through tubes to survive, many are dangerously malnourished, and sometimes it can be fatal.
Sometimes GP can be caused by diabetes, but in many cases it is caused by a different secondary condition or has no cause at all.
GP is considered rare, and like 95% of rare diseases in the US it has no FDA approved treatment.
If you’ve been following this blog for a while, you know i’ve been dealing with a severe GP flare since late December and have been unable to find relief. Right now i’m on a liquid only diet and have very little energy. My doctor just prescribed a new medication called emend, but I don’t know if my insurance will cover it, and the cost out of pocket is $400 a pill. I have been furiously fighting for what i think is a more practical solution, a feeding tube, but all my doctors think its too drastic.
We need affordable and effective treatment for GP NOW before more people lose their lives to this horrid disease. Tell your congressperson to pass the 21st century cures act!