Ehlers Danlos Syndrome Awareness Month Day #27: Frustration and Medical Devices

Ive had the same GI problem for over a year now. The cycle just goes the same way. Eat, nausea, cramping, vomitting, cramping, diarrhea (or constipation). All my doctors thought it was just IBS, but ive taken every med, ended up in the ER 4 times and im still struggling just to survive. Since this…

EDS Awareness Month Day #20: Doctors

I have really mixed feelings about doctors. On one hand, they are the only ones allowed to preform treatments, give drugs, admit you to a hospital and so I need them. On the other, that is why I dislike them. They question people’s illnesses, they get stumped/give up, they critizcise people based on weight or…

EDS Awareness Month Day #19: Transportation

I live in New York City, we have one of the best public transportation systems in the country right? WRONG. If you have a disability there are a limited number of subway stations that serve you. The ones that do are in the hubs like times square or penn station. These aren’t places I usually…

EDS Awareness Month Day #18: Friends

I am going to be honest with you, I am going out of my mind with boredom. My parents are on vacation and I am home all alone. I have friends but most of them are occupied with other things like vacation, work, school, or parental stuff. So I’m on my own. The thing about…